We worked with the doctors and specialists to fully understand (as best we can) the little guy's prognosis. These issues Obie already has are not likely to get significantly better over time, and Obie would be challenged with basic functions like walking, talking, and breathing throughout his life. The extent of the developmental issues he would face cannot be known for certain, but each specialist we talked to agreed that his prognosis is extremely poor. Ultimately, we have made the decision to take Obie off the ventilator, discontinue his intensive care, and take him home. He is under what is considered comfort care, as we spend time with our son and try to make his life as comfy, happy, and full of love as we can.
Obie in his room!
Pepper checking out Obie the day he came home.
Oberon's family (mom's side)
Oberon's family (dad's side)
A lot of love is pouring out for our Obear, and we are forever thankful for that. We are also thankful for him as he continues to bring smiles to our faces and warmth to our hearts. He loves being swaddled, cuddled, and read to. He didn't like being stuck for tests and IVs, and he seems much happier after being extubated this morning.
No one knows exactly how long this hospice arrangement will last, so please be patient with us as we may be non-responsive over the next days and weeks. When we are able (and when our time is no longer being spent giving our wonderful Oberon all the love we can), we will share more about him, including lots and lots of pictures (feel free to enter the over/under of number of pictures of Obie in the comments).
We will share more about this later, but yes - those are Obie's precious feet!